T. Raine

"I first came to Dr. Peatman for my right hip. I have cerebral palsy, and had walked for 40+ years with my unique gait. In the early 1990s, I was involved in several car accidents, from which I developed fibromyalgia, but I always fought it. I used an exercise bike and a rowing machine. But the pain was overwhelming. Everytime I tried to walk my leg muscles would just get unbeliveably tight and extremely painful.

I went to the spasticitcy Clinic at Herrick. We tried various pills, but they either made me hallucinate or made me get spaced out, and I am a writer, I can't be spaced out! Eventually my own doctor and I found a somewhat workable combination of pills. The clinic told me about the baclofen pump, but back then it was a new thing and I didn't want to be a test pig. I also had regular Feldenkrais lessons. They had kept me walking from the time I was 25.

I left my long term partner, partly because he was stubborn and didn't want to move to a more accessible house, among other important reasons. I found an apartment, but was unable to walk from parking my car up a hill (!) to my apartment without excruciating pain. I sold my car and with additional help from my dad and an aunt, bought my first electric scooter. I refused to be a prisoner in my home while blue sheild, medi-cal and medicare duked it out among themselves for another eight months in deciding who was paying what for a powerchair! I loved that scooter! For once I could enjoy long walks around the lake, and I wasn't tired or in pain just trying to do some shopping.

But the leg pain was still there, and over the next few years, every time I stood up, and took a few steps, my hip would grate and grind, my leg muscles would still get tight... in 2007 I was ready to try the baclofen pump, since oral baclofen did nothing for me. By that time I was unable to straighten my legs completely. Thank god for the pump. It helped about 50 percent.

But the hips continued grating and grinding like a creaky old door and were painful and were interfering with my love for swimming and using a recumbent bike.

So, in 2008, I met Dr. Peatman, and as he walked in he heard my hip making those awful noises. He said in 20 years, he had never heard a louder hip! So, he operated on my right hip. and oh my goodness! What a difference! No pain, and my rehab took place at Albany high school pool, and I was up walking with a walker. That summer as I swam in my care giver's pool, my left hip began catching and grinding... Sure enough my x-rays again showed extreme wear and tear. So, I braved the surgery, and the month long stay at Herrick and the accompanying bout of pneumonia again.

This time my recovery was slower, but in the Spring of 2011, I decided to try biking again. Got on my recumbent bike, and it was SMOOTH - no grinding or pain. So after I got up to 45 minutes, I decided to try cycling at BORP, which is an integrated biking program for people with disabilities. They have many different kinds of tricycles, and they adapt them to the individual. It's in Berkeley set at Aquatic Park. OH! Those rides were beautiful. My assistants, cousins, friends and I would do several full circles around Aquatic Park. I had a set back when I decided to do a tandem ride with my best friend over the pedestrian bridge, my thighs got sore, and the sling type seat killed my neck and back. BUT I shall return! Perhaps next fall I'll be able to do the BORP fund raiser ride in Napa.

I still use a powerchair because for whatever reason I can no longer get myself off the floor when I fall, but my quality of life is much better now that I have my new hips. Thanks Doc!" – T. Raine

Questions? Comments? Let Us Know!

Please fill in the captcha field

Captcha

Important: Please include non-medical questions and correspondence only.